Unfortunately, what should mark the end of my radiation, does not. On May 1st I had an extensive MRI of my hip. The next day, Wednesday, I met with my radiation doctor. She was recommending radiation to my hip as well – 10 treatments. Arg. She said that with my spine and hip there are structural risks of fracture by letting the cancer grow there. So, Wednesday after my appt they whisked me away to the CAT scan simulator and were marking my body with another set of tattoos to show them how to line me up on the radiation table. That was a tough pill to swallow. I had barely ingested this new information when the next thing I knew, I was speaking in front of 100+ college students in Monmouth. A little… reality check, I suppose. Regardless of the emotional toll that day, it was a blessing to be around such a great group of kids. Another reminder of a wonderful season passed. That night I ended up with a bad drug combo – and was practically out cold for over 24 hours. The radiation and chemo have been accumulating and I have been feeling pretty worse for wear. Super tired and super nauseous. This treatment will continue through next Wednesday.
Game plan: UGH, I’ll probably cry my way through typing this. It’s also a little scary and confusing. My new chemo regime will be on a 21 day cycle. Day 1, I’ll go in for an IV dose of Oxolyplatin (major neuropothy and cold sensitivity) and Erbatux (rash all over). On top of that, I’ll be taking the Xeloda pill (5-FU, nausea, diarrhea, etc.) on a 14 days on/ 7 days off routine. And in 9 weeks we will re-scan to see if it hasn’t done some damage (to the cancer, not just myself).
I have a scan coming up on the 23rd to get a baseline for this new treatment. On the bright side, I’ll have two weeks off of everything to ‘recover’ before being hit with the next phase. If ANYONE finds the pause button to life, will you please push it here?!? I’ll be ‘off’ from the 17th through the 28th of May. Doc’s still say no running or jumping, between my back, groin, and hip, I guess there’s a liability. I have managed to walk across the street a couple times, and made it out on a few errands. I’m SO thankful for that. My husband swears my ‘people watching’ has intensified with this bed-rest.
Please keep my children in your prayers. I’m all they’ve had since they were 5 and 3, and this has taken it’s toll on their sweet souls. They NEED God to move in and put their hearts at rest. They need to feel his care, and know His sovereignty. They struggle with unanswered prayer… as do we all. They’ve been dealt a tough hand, and deserve only the best. It’s unfair.
I guess that’s all the update for now. It’s always darkest before the dawn, right?